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Service User Group

Update December 2021

We were hoping to hold our first in-person service user group meeting this autumn to launch the group with some fresh eyes and voices. Unfortunately, due to the rising cases of Covid-19 in the local area, and the new omicron variant, we have reluctantly taken the decision to postpone this until the spring. If you have recent experience of the hospice services, we’d still love to hear from you if you’re interested in joining the service user group. Find out more about the group and joining us below.

In the meantime, we are looking at how we can develop our services to help people in the local community achieve inner peace when facing the end of life. Whether you have any knowledge of the hospice or not we'd love to hear what inner peace means to you and what sort of support you think may help.  If you'd like to share your views, anonymously if preferred, please get in touch on 01206 646 275 or email

Would you like to share your experiences and views about St Helena Hospice to help us improve and develop current and future services?

As someone who has experienced our services, you are an expert. You can offer valuable feedback and insight into how we can improve patient care and support for families.

Our aim is to learn from real user experience to help make continuing improvements to the services we provide to shape the future of St Helena.

What is the Service User Group?

The Service User Group is a small group of people who have used our services, either as a patient, or family member, carer, or loved one of a patient. The group meets to discuss how St Helena’s services are currently delivered and how the quality of our care can be maintained or improved.

We want to ensure the care and support we provide is what patients, families and carers actually need; not what our healthcare professionals think they need – that’s why the feedback and insight of those who have experienced our services is so valuable.

What’s involved?

We have different voluntary roles to suit different people and their lives.

Some members attend regular Service User Group meetings to contribute to service development plans; advise on patient information literature; and, most importantly, represent patient and family views on the current hospice services.

Other members attend regular Patient and Family Services committee meetings at the hospice as a patient and family representative, ensuring the patient’s perspective is represented on relevant topics (no clinical or medical background or knowledge is required for this).

Committing to attending regular meetings isn’t always easy. If you’d like to offer your opinions and support, but cannot commit the time, being a virtual member is a great way to still be involved. All you need is access to the internet to keep in touch and have your say via email. 

Or, you don't have to become a member to get involved. We often get involved in specific projects which anyone is welcome to support, such as looking at how we can develop our services to help people in the local community achieve inner peace when facing the end of life. 

Find out more

If you’re currently using or have ever used any of our services, we’d love you to join our Service User Group. It’s a way of making a difference for other people in our care at the hospice or out in the community.

If you’d like to find out more, the user group chair would be delighted to have an informal chat about the group and being a member. Please email or call 01206 931 464.

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