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Life Stories: Daisy

"I pride myself on my gift giving and I actually prefer seeing other people open my gifts to opening my own presents."

Stories and memories recorded to celebrate people beyond their diagnosis, as part of our Life Stories.

Image: St Helena Hospice Life Stories Daisy Murfin

Daisy Murfin

Daisy transcript
Hi, my name is Daisy. I am 28… just, still going to pretend I’m young… no but I’m 28 and we were a completely normal family. I had a job in London, I'd commute, loved it. I saw my friends at weekends, went out, made the most of life. We were really good at just living in the moment and enjoying life because I've always been ill, so there's always been times where, you know, I'd have a birthday party and I wouldn't even make it to the happy birthday blowing out the candles because I was so poorly, so I had to leave my own parties early and just things like that. So we enjoyed life as much as we could and can.

I love Christmas! Family time, we always have family time. Our Christmas Day looks like me, my brother, my mum and my step dad all in Christmas pyjamas. We spend the whole day together, do presents in the morning, the Christmas fry up and then mum opens the wine and starts the Christmas dinner. And then we all have homemade Christmas crackers and my mum will buy like gifts for all of us and they go in the crackers, and we just watch Christmas films usually like Elf or Nightmare before Christmas and just really spend time together. 
We have to wait for two weeks before Christmas to decorate our tree because Mum said that I'm not allowed to decorate in November, even though I want to, so as soon as it's the first of December. I'm like it’s Christmas! 
I'm a really good gift giver. I start in like January and I'll find things and be like this would be perfect for this person and I get the perfect gifts. I pride myself on my gift giving and I actually prefer seeing other people open my gifts to opening my own presents.

I think that there are a few people out there in the world like that. But I do prefer seeing other people's reactions to my gifts than... And even last year I was blind. My mum had to help me get all the right gifts and we did a good job actually. She made all my presents look gorgeous and everybody was still quite shocked. So, yeah, Christmas is very family orientated and food orientated.

Well there’s my… I’ve got family up north and there was talk that they are all looking at coming down for Christmas so it’ll be a big family Christmas. We did do big family Christmases when my grandma was still alive but she sadly passed away and we didn’t really go up after that as much. But the thought of having my family down here all together is amazing, because I think big group situations are really good for people like me because if I get tired and fade into the background, I’m still part of the fun but everyone else is still having all the fun and I can like enjoy it at my own pace.

Because that's all I care about, my immediate family that they're OK and they're looked after. That is the main thing. So everyone's able just to get on and just be family and focus on the family stuff, which again is why Christmas is so important, because it's all about family. 
Listen to Daisy
 

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