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St Helena is committed to protecting the privacy of everyone who uses our services: as patients and carers or as employees and volunteers; and that of anyone who supports our work throughout fundraising, retail or lottery activities. This statement explains what personal data we collect and process, how we collect it, whom we share it with, and why we do so. It also explains the steps we take to keep data secure. If you have any questions about this privacy statement or our privacy and data processing in general, please contact our Data Protection Office firstname.lastname@example.org or 01206 845577 or write to use at the address below. Please also use this address for Freedom of Information (FOI) requests. For patient privacy concerns the address is email@example.com
By personal data we mean any information that might allow you to be identified, such as your name, address, date of birth, credit card details, I.P. address, photo or video image or voice recording. For our patients, some of this data will be sensitive and relate to their health and wellbeing, ethnicity and religious views.
We are St Helena (Charity No. 280919), a charity that helps local people face incurable illness and bereavement in the North Essex area. Our registered office address is:
Myland Hall, Barncroft Close, Highwoods, Colchester, CO49JU
We may collect personal information about you when you take part in one of our fundraising events or challenges, make a donation, play our lottery or raffles, buy items in our shops, apply to work or volunteer with us or use our website. If you are referred to one of our clinical services we will collect data from you and may also receive it from other healthcare providers. Our current lawful basis for collecting personal information is contained within Schedules 2 and 3 to the Data Protection Act (2018).
Fundraising, visiting our shops, and playing our lottery
The personal information we collect about you for the purposes of our fundraising, lottery and retail activities might include your name, address, email, phone number, date of birth, I.P. address, photo or video image and financial information such as credit card details. You may appear in still images or video footage using Closed Circuit Television (CCTV) that is used on some hospice sites for security purposes.
You can read the staff and volunteer privacy statements below:
If you use our clinical services we will need to collect information such as your name, age, address, gender, and possibly sensitive personal information concerning your health and wellbeing, ethnic origin, sex life, and religious views. In order to provide complete care we may also collect some information about family members and carers. If you stay on or visit our premises, such as our Inpatient Unit, we may collect your image on CCTV. It may also be necessary to take still images of you for medical purposes, such as in the case of pressure ulcers. If you call our SinglePoint service your call will be recorded for training and quality purposes. We also receive data about our patients and their families and carers from other healthcare providers.
St Helena is part of My Care Record, an approach to improving care by joining up health and care information. Health and care professionals from other services will be able to view information from the records we hold about you when it is needed for your care. Please see www.mycarerecord.org.uk for more information.
Please note that, during the COVID-19 pandemic, we may be required to share your medical information under Regulation 3(4) of the Health Service (Control of Patient Information) Regulations 2002 (COPI) for the purposes of research, protecting public health, providing healthcare services to the public and monitoring and managing the COVID-19 outbreak and incidents of exposure. This Notice is imposed on us by the Secretary of State for Health and Social Care and will be reviewed on or before 31st March 2022 and may be extended by The Secretary of State. If no extension is made, this Notice will expire on 31st March 2022.
The National Data Opt-Out
The national data opt-out was introduced on 25 May 2018, enabling patients to opt out from the use of their data for research or planning purposes. To find out more about your rights, please click here.
Using our website
If you use our website, we will store data about your internet browser, I.P. address, the timings of your visits, and a record of which pages you looked at.
Use of 'cookies'
Like many other websites, the St Helena website uses 'cookies'. Cookies are small files stored on your computer that allow websites to recognise you when you visit. They store data about your browsing history but will not identify you as an individual. This helps us to improve our website and deliver a better more personalised service.
By using our website and services you agree to be bound by the terms of this statement.
The St Helena website may include links to other sites, not owned or managed by us. We cannot be held responsible for the privacy of information collected by website not managed by us.
We may use your information for any of the following depending on our relationship with you.
For our fundraising, retail and lottery services we may collect data in order to provide you with products and services (sometimes as part of a contract), process a donation you have made, to send you newsletters and other communications about our work or to allow you to take part in events.
We may occasionally use desk research and profiling to identify potential donors and help us better understand our current donors. Such information is compiled using information you have provided and publicly available data. External sources could include Companies House, social media platforms, newspaper articles, and wealth listings. We may also use profiling to produce short biographies of individuals where they are due to meet with a staff member or attend an event.
We carry out research such as this in order to better understand donor motivations and preferences, with the aim of greater engagement with our supporters. By better understanding our donors we are able to tailor appropriate requests for support and ensure our approaches are relevant and consequently more effective.
We always seek to ensure that any research or profiling is done in a way that does not unreasonably or unexpectedly intrude on an individual's privacy. We also endeavour to make sure that in accordance with fair and lawful processing requirements under current legislation, individuals are made aware of the purposes for which we may collect and process their personal data at the earliest reasonable opportunity.
We respect your rights of privacy and are happy to provide further information about any Profile details that we may hold about you in accordance with your data subject access rights under current legislation.
In accordance with those rights, you may also at any time request that we update, correct or delete any Profile information that we may hold about you and/or no longer use it for direct marketing or fundraising purposes.
We collect personal data about job applicants and employees for administrative purposes and in order to comply with employment and safeguarding legislation, such as referrals to the Disclosure and Barring Service.
We collect personal data from our volunteers for administrative purposes and to comply with safeguarding legislation, such as referrals to the Disclosure and Barring Service.
When we collect data from patients and their families and carers, we do so in order to provide care to them and protect their wellbeing. We also collect and store it for the purposes of audit, quality control, and incident reporting.
We will never sell or swap your details with third parties. We may share data you provide with trusted third parties, subcontractors, our regulators, and with law enforcement authorities. We may share patient data with other healthcare providers with the patient’s consent. We may sometimes also be legally required to share it with local authorities and our regulator, the Care Quality Commission.
For direct marketing communications we collect data only with your explicit consent, which you may withdraw at any time. We will enable you to record your preferences using tick boxes at various points when we communicate with you.
On correspondence requesting consent from you we will ask what types of communication you would like. Please see below further detail on what you would expect to receive for each type of communication:
Appeals and fundraising
Lottery and Raffles
St Helena Events and Challenges
Information about our services
St Helena news and publications
We care about the accuracy of the information we hold about you. If you believe any information about you is incorrect or out of date, please contact us.
Fundraising: 01206 931468 or email firstname.lastname@example.org
Retail: 01206 890165
Lottery: 0800 285 1390
Volunteering: 01206 931466 or email email@example.com
For patients, please contact our SinglePoint team on 01206 890360
At St Helena we take your security and privacy seriously. When we collect your personal information we use a variety of technical processes to prevent unauthorised access including firewalls, digital surveillance, and encryption.
Any sensitive information you send to us (such as credit card details) will be encrypted. Non-sensitive details (your email address etc.) are transmitted normally over the Internet, and this can never be guaranteed to be 100% secure. As a result, while we strive to protect your personal information, we cannot guarantee the security of any information you transmit to us, and you do so at your own risk.
In some circumstances we may need to know if you are aged 16 or under and may refuse certain services, products or events unless we have your parent/guardian’s permission.
If you believe that we breached your privacy in any way, we urge you in the first instance to contact our Data Protection Officer. If you remain unsatisfied, you have the right to lodge a complaint with the Information Commissioner’s Office at the address below: Information Commissioner's Office Wycliffe House Water Lane Wilmslow Cheshire SK9 5AF Tel: 0303 123 1113 (local rate) 01625 545 745 (national rate) https://ico.org.uk/global/cont...
When you make a donation to St Helena Hospice, we are charged transactional fees by other companies, including fees for processing payments made to us, looking up addresses and validating bank account details.
We are very grateful to our donors who offer to offset some of these fees with a minor addition to their total amount. This is however completely optional and we are very grateful for your support whether or not you choose to contribute to processing fees.Close
We are able to claim an extra 25p on every £1 on your donation amount for no extra cost to you, as long as you are a UK tax payer; have paid enough income tax or capital gains tax in that tax year; and are donating your own money. If you pay less income tax and/or capital gains tax than the amount of Gift Aid claimed on all of your donations in that tax year it is your responsibility to pay any difference. For more information about Gift Aid, please visit https://www.gov.uk/donating-to-charity/gift-aid