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Someone for me to talk to

It was just one month after a diagnosis of bowel cancer that Tracey Griggs, vivacious mum of three, died at the Hospice last summer, age 55.

With the help of St Helena counsellor Julie, Tracey’s youngest daughter, 17 year old Caitlin, is managing to look to the future and shares her story to support other young people who are grieving…

My mum was lovely. That was her favourite word. She was so caring and she was about making everyone happy. The day we found out everything, we all had a cry and then she got up and she was dancing, the life of the room, the life of the party. She was amazing. I miss her a lot.

The cancer was caught late. She'd been having problems since the beginning of last year and was being treated for gallstones but her symptoms just didn’t line up, so she was sent for extra scans and a mass in her colon was found. From then it was discovered quite quickly that it was late stage bowel cancer.

My mum was quite healthy and so it came as a shock. Week after week it spread, it was really aggressive. I wasn't expecting that outcome, that's for sure. We found about the cancer on the first week, then the second week it was that it had spread to her lymph nodes and was now inoperable, and then the week after that she went into hospital. We were unaware of actually what was happening inside, it was just spreading so rapidly around her body; the lining of her stomach, her lymph nodes, her back, around her oesophagus, basically everywhere. In our third week of her being diagnosed, we found out it was end of life. She deteriorated within four weeks of diagnosis and we ended up at the Hospice.

Then we found out my dad’s mum, my nan, had died, which although she had been poorly and been in hospital for quite a while, was unexpected. She was actually around the back of my mum's ward in hospital and we found out she died around 6am. It was just so surreal, just one thing after another. It was a brutal four weeks.

Image: Caitlin with her mum Tracey and sister Cherry

Tracey, Caitlin and Cherry

My dad, my brother and I got to the Hospice first and my sister went in the ambulance with my mum. My dad's father died there in the 90s so my dad sort of knew the situation. I remember while waiting in the chapel there, we actually found his name in the remembrance book. I was panicking, trying to do anything I could to distract myself, and I was looking through all these books and I was, oh that's your dad there. I felt bad for my dad because his mum had died that day, and then he was coming to the place where his dad died, for his dying wife. My dad had a lot to take on that day.  

It was pretty traumatic when we first got there because they told us at the hospital they didn't think she would make the journey, and it was really upsetting. I remember standing at the window, just waiting for the ambulance to turn up and it was taking so long. 

On that first day it was just getting her comfortable, then in the evening quite a few our family and my mum's best friends came. It was nice because we played music and the nurses thought it was brilliant that my mum was singing Abba and Whitney Huston. She could not sing! It was quite amusing, we were all singing with her and it was emotional but nice. We have a Spotify playlist called ‘Mum’ of all the songs we played, so as we were playing it, my sister was putting it into a playlist. It’s nice to have the songs and I've got nice memories of that Monday night.

When I got to the Hospice, Julie the counsellor already knew about me and she came to see me within a few hours of me turning up. It was nice to have someone there for me, even before my mum died, someone that sort of already knew the situation and who wasn't family. 

Julie was there for me from the get-go. She was good for the whole family really. She came and spoke to us all briefly and she'd catch me in the corridor when we were walking through. I could speak to Julie throughout the week we were there, not for too long so I wasn't away for too long from my mum.

It meant a lot that we could have all the family there. The staff were really accommodating as we were there for five days and my whole family camped out there. Because it happened so quickly, we hadn't even told people that she had cancer, it progressed so quickly, we didn't have chance.

Image: Tracey

Tracey Griggs

I think my mum was very grateful to be at the Hospice as well because she'd said the week before that she wanted to go there. We've had a few family members go through there, so she knew she wanted to be there. It made it a lot more peaceful for my mum because she wanted to go there before she even knew it was terminal, she wanted to go there because I think she knew, and we got her there and they were so good. 

We stayed there at night with my mum. They got us a hospital bed and my sister and I shared an air bed, and someone would always be awake with my mum, we'd all take it in turns. 

The gardens were really nice and I’d go and sit out there to sort of just chill out in the gardens when it was getting a bit too much. We could hear the pond fountain from the room. We'd be up at the crack of dawn every day, 5 o'clock in the morning. We'd see the sunrise and we'd go and sit outside and it was nice. Sometimes I would eat my breakfast outside because it was just nice to have five minutes just to sit with my thoughts. I wasn't expecting it to be that nice.

The nurses were really lovely, they’d come and check on us and get us teas and coffees. I remember we were all quite unwell when we first got there because we'd spend days not eating through worry, so when we got there, we were all a bit sick and they were so lovely to us. I feel it was just the relief as well after the last three weeks had been intense, and then getting there where it was just peaceful. 

The food is good there, so good. We had breakfast every day. We had lunch every day, all of us. We had dinner. I was surprised because I was expecting in a Hospice for the food not to be what it was, but it was good; dauphinoise potatoes and steaks, it was good, they fed us well. And the ice machine! Going to get ice, chewing ice; it was really good, not only for mum but for us as well. 

Image: the Griggs family

The Griggs family

We put up loads of photos in my mum's room so everyone could see them and the nurses said how lovely they were. My mum looked completely different towards the end so it was just nice to have the photos there of the whole family, my dog, me and my mum when I was little, my sister and my mum… loads, just loads, about 50 photos. We stuck them all to the wall around her bed. It was nice to have those photos there, it made it feel a bit more homely. 

I'm a massive Harry Styles fan, and on 19th June, two months before she passed away, my mum, my sister and I were at a concert in Wembley and we have all those photos, and that's the last thing we did with her. The last thing we did with my mum was being dressed up in feather boas and cowboy hats! It's a nice memory to have that we had a good time that day.

So we had a nice few weeks and then a rough few weeks, and then we went to the Hospice. She passed away with just us there, the four of us, my sister, my brother, my dad and me. 

I sort of have a very positive outlook on this in some sense that my mum would have hated going on with the chemo, she would have hated it. She would hate losing her hair, she would hate being sick, hate everyone waiting after her. I felt the way it happened was the way my mum would have wanted it. It was quick yes, and it wasn't nice, but it was the way she would have wanted it. It was very peaceful. 

My mum would not have wanted me being upset and just moping around. I mean, I have my days, obviously everyone does, but I sort of try and keep positive about it. I know my mum's death was peaceful and she was at the Hospice and she wanted to be there, and the family was peaceful there as well. I've got a lot of support with Julie, she's a massive help. 

Image: Caitlin with her mum Tracey and sister Cherry

Caitlin, Cherry and Tracey at a Harry Styles concert

Julie was my outlet for quite a while and she's good at just listening. That's all I really wanted from it; it was just nice to speak to Julie, another woman, someone that's not linked to it either. I feel she helped a lot because she'd help me think about things and would explain things to me and it made things a lot clearer for me.

It all happened quickly, every single week it was something new. It was a lot to take in. I don't think I really took it all in until after my mum died. I have these moments where reality hits and it's just intense. And then I think I’ve got things to do, I can't be sat here crying, and then I pick myself up and keep going. 

It’s been difficult. I was very close with my mum and it's going to be hard but I'm just going to get through it because I'm going to go to university. I'll be the first one to go to university in my family and my mum was very excited about it, so I've got to go now. I'm deferring, that was the plan originally anyway to defer and get some work experience in the industry. My mum would have been very proud of me.

I wouldn't have been fine without Julie. Honestly, I can't rate her enough. She’s been incredible. When we first got there, we were in a whirlwind and Julie came and saw us, ‘hi I'm Julie, the counsellor’ and she kept saying it so I would remember, so now that's what we call her, Julie the counsellor, that's her nickname. It was nice knowing she was there walking through the corridors and popping her head in the door and having a chat with us. It was just nice knowing I had someone for me and that there was a plan set up for me after this all happened. I feel that was something that the family was quite stressed about, that I had nothing, so they were relieved then when I got Julie. She probably went above and beyond which I think everyone does at St Helena. 

I had heard things about the Hospice when family friends had gone there. I'd heard about how they let them have alcohol if they want and their dogs could visit etcetera, and I just couldn't imagine a place where you could do that when you were so unwell. And then actually being there, it was just such an eye opener. It was pretty incredible going there. I mean, who would want to visit their mum at a hospice? But if you have to, that is the place to go.  

Image: Tracey and Mark Griggs
Image: the Griggs family
Image: Cherry at London Marathon 2023
Image: Tracey with Caitlin as a baby

This story may not be published elsewhere without express permission from St Helena Hospice.

 

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