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Read stories DonateDaisy Murfin died age 28 at her Colchester home on Thursday 21st March, surrounded by her loving family. Daisy had been supported at home by St Helena Hospice since last summer for several complex conditions including kidney failure. She had also spent two occasions in the hospice in Highwoods to manage her symptoms before returning home with support from her clinical nurse specialist and SinglePoint.
Since the beginning of the year, Daisy had been sharing her story about her experience of hospice care in the hope to raise awareness about the difference St Helena Hospice has made to her and her family at home and at the hospice. It was Daisy’s wish that her words continue to be used to help raise as much money as possible for St Helena.
Over the four day Easter weekend, from Friday 29th March to Monday 1st April, it was Daisy’s hope to raise £54,800 through the Love, Daisy appeal - the amount it would cost to run St Helena for a day.
Daisy had shared:
“The support from St Helena Hospice had been life changing and I am so grateful that I am where I am, and I'm able to enjoy what I can for as long as I can.
“I want to make sure that everyone knows what hospice care means to me and my family. You don't know how good St Helena Hospice is until you need it. Now they are involved with my care, it's just easier to focus on the positive things
“With support from my nurse, Di Turner, and SinglePoint, who we can call 24/7 for advice and support, it's been life changing for us as a family. St Helena has freed up the people I love to be able to spend quality time with me. I can just breathe, live my life, and make the absolute most of the time I've got left.
“St Helena as a whole makes you feel like you are part of the family and it's really comforting because I feel like my loved ones will be left in a family unit, and have all the support they need when it happens, which is really comforting to me.
“It makes me know that when it does eventually happen, they will be taken care of as well. I think nobody ever realises that when you are the one dying, you worry a lot about what you're going to leave behind and you worry about upsetting everyone. Obviously you're going to leave a hole that's never going to be filled, but it's nice to know that there's bereavement counselling. I'm happy to know that people will be taking care of my family even after I can't.
“The hospice can do so much for so many people. They are just so good at what they do and I for one am just so happy that the hospice is still here today. I really do hope that people in the future do see it as a place to go to for help, peace, serenity, support, not just end of life, because it's so much more than that.
“Everyone facing the end of life deserves the standards of care that St Helena Hospice is able to provide so they can live their life with dignity right up to the very last moment.”
Dr Karen Chumbley, Chief Clinical Officer at St Helena Hospice, said:
“Our thoughts are with Daisy's family and friends as they navigate this extremely sad and difficult time with the continued support of St Helena.
“Daisy had such a passion for life, a deep love for her family and was determined that her legacy continues. It was Daisy’s wish that her words continue to be used to help raise as much money as possible for St Helena Hospice, and her family have given permission for the Love, Daisy appeal to continue in her memory.
“St Helena Hospice is supporting more people than ever before in our community, but our income is not enough to meet the demand for our vital services.
“We are in a financial crisis, with a deficit of more than £1million. As a result of 2024 being a leap year, we have the added challenge of having to raise an extra £54,800 to run St Helena for the additional day. We need your help right now.
“Please support the Love, Daisy appeal in tribute to a remarkable young person who shared her story at her most vulnerable time so that others may receive support and care too.”
Visit www.sthelena.org.uk/lovedaisy to support the Love Daisy appeal this Easter weekend.
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