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I want to make sure that everyone knows what St Helena Hospice is all about

“I’m Daisy, I’m 28 and I have stage five kidney failure. I have stayed at the Hospice twice and right now I am being supported by St Helena at home.
You don't know how good St Helena Hospice is until you need it, and I think that's a shame. I want to do what I can to make sure that everyone knows how amazing the people are and what St Helena Hospice is all about. 
 

At home, where I am now, the Hospice in the Home team are looking after me, especially my clinical nurse specialist, Di Turner, who is the queen! She'll say she's going to do something and then within 48 hours it's done. She knows exactly what she's doing and understands I need to know what's going on. 

It’s great that somebody from a professional medical point of view can be in the house to support me, but also actually support my mum. Di checks my mum's OK and then sits back down, chats with me about my medication, what my future looks like, what my goals are. Everything she says she is going to do, she does. She’s amazing. So is SinglePoint, who we can call 24/7 for advice and support if we need it.

Young girl sits in bed smiling

I stayed at the Hospice for a couple of weeks recently. I didn’t go into the Hospice to die; I went in to get a better quality of life and to enjoy my life. 

You hear about the Hospice and you get nervous and think it's just about dying, and it's actually not. I think mainly it's actually because of the staff; they have time, they remember small details, they remember family members’ names, they call me Daisy. 

It's just all about what's best for you, and you kind of steer the train. That's important because everyone will get to know me and how I am before I get to my expiry. They'll know what I like and then I know that we'll be as comfortable as possible for as long as possible, which is really nice.

I am confident to know that I am very much supported, and it's all about the quality of life, not how long I need to spend in the Hospice. Whereas before I needed the Hospice, my view was you probably only came in for four days and you were dead at the end. I didn't realise that they did things like rehabilitation and support along the way as well for you and your family. It's really important that my family are getting supported because they're going through this just as much as me.

You feel like you are part of the St Helena Hospice family and it's really comforting because I feel like my mum and my stepdad and my brother will be left in a family unit and have all the support they need when it happens, which is really comforting to me because that was one of my stresses when I go. Not that I expect hearts to be breaking all over the world, but you do know that you leave hole in people's lives, so it's nice that there's lots of support for them as well, which I didn't know St Helena Hospice provided until I opened my mouth and started chatting to everyone.

St Helena is supporting me every day to enjoy the life that I can, for as long as I can.

I never thought I would need the hospice. It is amazing. 

Please play Your Hospice Lottery to support people like me. 

 

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